Monday, January 17, 2011

Here we are, only two more treatments to go and it is 'home james' ! woohoo.
Emily should have started chemo last week, but her neutrophils do not want to rise, they are still sitting at 0.6 and have to be 1 before chemo, After all the treatment she has had so far, the bone marrow is taking longer and longer each time to recover.
Today Emily had a bone marrow sample taken. They found it tricky this time and had to have three tries at it, and still only got a tiny amount of bone marrow. They say it is because she has had so many treatments and her marrow will still be suppressed, and she has soft bones now as well. Poor bub.
But Emi has been very well, she has not needed antibiotics this time during her neutropeania. (which is amazing, she is very healthy - must be mums good milk eh,  ha)
We are staying at ronald house for the time being untill she is ready for round number 5 ( probably by the end of the week).
It has been sooooo good staying out of hospital though, real food, privacy, freedom to explore the outside. we have spent most of the time in the park, Emily loves being outside - I don't think there is a tree left where we havent sat for an afternoon.
Emily is gaining weight a little bit because of her night feeds, and she is slowly starting to eat a tiny amount at most mealtimes.
Since we have been staying out of hospital, Emily has seen a few other children around, ( although has not been able to play with them) but she is quite interested. Can't wait untill we get home, I will be taking her out to socalise as much as I can.
Emi's new tricks are clapping hands on command, waving, and turning herself around on the floor whilst sitting. Still no signs of crawling yet, but she hopefully will one day..