We went in for Emi's blood test and I signed the consent form for her bone marrow sample that is being done tomorrow ( a simple procedure where she goes under a general anesthetic and they take a sample from her bone marrow).
Then we are to stay from wedensday, when Emily starts her next lot of treatment.
I am a bit scared about this one, as the dose of chemo is 15 times stronger than last time, and it will probably knock her back quite a bit. Seeing Emily get sick and miserable after the first lot was bad enough, so am not looking forward to it.
One of the things that worries me is that she cannot have the liquid suppliment they give paitents to help their nutrition, as Emily is too small and young!
on a brighter note, we went to the park three days in a row and had picnics on the grass, more swings and feeding ducks. Emily had a taste of her first lollipop.
Emily has been dong more - yes more painting , man blue is a hard colour to get off!
Emily's auntie and daughter are here in chch for a few days, Emi enjoys their company.
Emily has learned a few new 'tricks' in the last couple of days, - shaking her head, growling ( not too fussed on that one) and overall becoming more alert and active.
Off to bed now, big day tomorrow with Emilys wee 'op' will blog again soon.
Thats really good to see, you guys got out to the park. Best wishes for the next lot of treatment, keep trooping on you are all doing very well:)
ReplyDeleteHi - What a brave girl Emily is - and so are her mummy and daddy! I would really love to be able to be supportive to you all - especially when you are so far from home.
ReplyDeleteMy email is carolyn_grant@clear.net.nz - cell is 027 733 6654. Perhaps we could meet for a coffee? I wish you all the very best - take care and please do feel free to make contact with me.
Carolyn
Emily you are just gorgeous & Purple really suits you!! Bet that lollypop was DELISH! You look like your enjoying it :)Glad you guys are getting out & having some fun enjoying that lovely weather!
ReplyDeleteWe think of you everyday & pray for you to stay strong & be Brave Lots & lots of love Karla,Katie & Milly xoxoxo
Happy birthday Emily! and wow congratulations Mum and Dad on your beautiful one year old. I can only imagine that having the feeding tube reinstated is a drama you could have done without but perhaps she knew how fantastic she was going to look in that dress without it!!
ReplyDeleteI love checking your entries to see how life is going, you are amazing people, and Emily looks like a real little treasure.
Here's hoping you get to the park lots over the next while!