Over halfway!

Well, here we are, christmas just two sleeps away, and we are lucky enough to be staying at Ronald house.
Emily finished her 4th round of chemo on tuesday, - only two more to go!!! yahoo, lets hope all goes well.
We had a scare mid december when Emily got a fever, and went downhill so fast, I was scared, but the doctors and nurses are, luckly, on to it straight away, and Emily got better within a few days. But her hickman line was still infected, so out it came!
two lines were put in her hands for three days untill she had a temporary pick put in her arm (more trips to theatre - I hate taking her there, never gets easier).
And the chemo was put through the pick in her arm. then on tuesday, Emily had a new hickman (chest) line put in, it took ages this time, over two hours, and I was so pleased to get her back in my arms after the op.
(Happened to be Daddy's birthday too).
I think Emily had a sore mouth , maybe teething or something, as she would not drink for two and a half days! I ended up putting water and milk in her nasal gastric tube! but she is feeding again now and that is good.
as you know, we put an auction on trademe for Emily's painting, to help us out, and whooa! ( I was hesitant when tv asked to interview us, but they insisted) it went crazy! we have more than enough now, and so I am using all that we do not need, as a trust for Emily when she is older (special education etc - she will need it, I want to help her be the best she can be, and she will be something special, I can tell).
We are also giving back to the hospital playroom (as toys seem to go walkabout alot from there) and to Ronald Mcdonald house.
So a huge, huge thankyou to everyone who has been so kind to us, Emily is such a special girl, and we appreciate it so much.
And, I knew I would get at least one nasty comment, I feel sad for that person, that they must must feel that way, it must've been hard. I know we are doing something that is right, as it is all for Emily,  she is a good cause, and she WILL contribute to society, she has the whole future to spread her inspiration, who knows what she will achieve, but I know it will be something pretty amazing. 

Tis the season..

As the nurse aide unpacked the christmas decorations today It suddenly dawned on me - omg, xmas is nearly here! I havent even thought about christmas pressies this year, not sure if i will, I will try get something for the nieces and nephews, - can't let the kiddies go without.
We have had a good week this week, Brendan is up, staying at ronald mcdonald house, and Emily and I in hospital, but for most of the week Emily has been allowed out for a few hours each day,as her neutrophil count has been high enough.
Emily stll isn't really eating, but having a few spoons a day so that is someting at least.
The nutricionist has put Emily on 20hour per day feeds to keep her calorie intake up, so that is good.
I think the next lot of chemo is due to start around the 14th dec, so I am expecting to be stuck in hospital for christmas day, but if there is a way we can get Emily over to ronald mcdonalds for the day I will do it! fingers crossed.
I am surprised that Emi hasnt lost all of her hair yet, she lost most of it after the very first lot of treatment and was left with a wee 'ring' of it around her forehead - cutey, and now some is starting to grow back on the rest of her head! but I wont be surprised if she does lose it again.
Emily has had a really good week, off the morphine and panadol, anti nausia drug finished, only one lot of meds a day at the moment, so very low matinence for the nurses, great! keep it up Emi!

This is how I find Emily most mornings.....can't be comfortable :)lol