Monday, September 27, 2010

Fun in the park before hospital stay

Emily has been  almost back to her her normal, happy self this past week, and we made the most of the nice weather before she goes back to hospital.
We went in for Emi's blood test and I signed the consent form for her bone marrow sample that is being done tomorrow ( a simple procedure where she goes under a general anesthetic and they take a sample from her bone marrow).
Then we are to stay from wedensday, when Emily starts her next lot of treatment.
I am a bit scared about this one, as the dose of chemo is 15 times stronger than last time, and it will probably knock her back quite a bit. Seeing Emily get sick and miserable after the first lot was bad enough, so am not looking forward to it.
One of the things that worries me is that she cannot have  the liquid suppliment they give paitents to help their nutrition, as Emily is too small and young!

on a brighter note, we went to the park three days in a row and had picnics on the grass, more swings and feeding ducks. Emily had a taste of her first lollipop.
Emily has been dong more - yes more painting , man blue is a hard colour to get off!



Emily's auntie and daughter are here in chch for a few days, Emi enjoys their company.
Emily has learned a few new 'tricks' in the last couple of days, - shaking her head, growling ( not too fussed on that one) and overall becoming more alert and active.


Off to bed now, big day tomorrow with Emilys wee 'op' will blog again soon.

Tuesday, September 21, 2010

Second lot of chemo to start on Monday ...

What a beautiful day here in christchurh, Emily has just been in to have her 'meds' - Ambisone (she has every second day, takes about two hours) She is fast asleep now,  lovely.
Emily was weighed and measured again, she has lost a wee bit more weight despite starting to eat solids again on monday, but she has finally started to grow longer, 67cms now! , sweet wee shortie :)
Not looking forward to starting the chemo again, just when we are starting to get her to eat and then she will get sick again, but they assure me they will make sure she dosent lose too much weight.
We have been staying at Ronald Mcdonald House for last few days bfore her next lot of treatment starts, as Emily has been well enough, so that is great.
Wish Hubby could be here while Emi is having Chemo tho, I will just have to get the nurses to give me a hand with Emi when I need to I guess.
Took Emily to the park yesterday and she had her first go on a swing all by herself! she loves it, will have to take her there as much as I can.
It is a shame Emily will miss out on interaction with other children for 6 months, I dont suppose it will matter too much though, as she certainly gets heaps of interaction with the nurses!

Sunday, September 19, 2010

Thanks Sharlene, Karla, and everyone who has wished us well


A big thankyou to Sharlene for setting up this blog ( i hardly knew what one was untill now), and to all the people who suggested it. We are amazed by the number of kind thoughts and well wishes for Emily.

I went and brought more canvases and paints for Emily's artwork, she just loves painting!! the hospital wall will be covered in her works by the time she leaves!

Emily is on day 16 after finishing her first lot of chemo, her hair is falling out and she is feeling grotty, but much better than last week when she spiked a fever, having platlets and a blood transfusion helped. It is scary seeing babies go downhill so fast.

Emily has always been a fussy eater but now she hardly has solids at all, and when she does it is usually one paticular type of food, she ate a small amount of tea tonight, good girl Emily.

So at the moment Emilys blood cells are starting to recover, when they do, she will start her next lot of chemo.

Dad arrived up yesterday for a few days and Emily was sooo happy to see him :)

Saturday, September 18, 2010

WELCOME

Welcome

 Hello all and welcome to the blog of Princess Emily.

Where you will find updates of how Emily is going.

Please click to the right hand side and follow the blog.

Thanks to everyone for the support so far.

Words cant explain how everything is happening.

Please feel free to leave comments for the family under posts:) im sure the family will be very grateful

To Emilys family this is easy to use, and i hope you like it.
Sharlene:)