Poor wee Emily, what a horrible few days we have had, this dose of chemo knocked her for six, she was very lethargic, almost like in a coma for two days, vomiting all the time, but there was another problem.
I have had my concerns about her tummy since she was born, with violent vomiting, then as she got older very smelly burping and fermented smelling vomit, I kept expressing my concerns with the doctor and paeds, but they were not concerned, put it down to reflux. ( I was not convinced).
So after the chch doctors getting a wee bit concerend about Emily's reaction to this lot of chemo, they sent her off for an xray, and sure enough, there was someting funny going on.
Duodenal web, almost always discovered at birth, and a problem found in down syndrome babies.
It basically means, the top of her intestine, near the bottom of her stomach, is too narrow, so food cannot pass through properly. Emily has developed a ball of old food that is sitting in her tummy with nowhere to go, ( might explain some of the feeding problems I have been having before chemo as well).
It will get more severe with time too, so Emily is to have an operation on friday.
She has to fast, as her tummy needs to be competely empty for op, so she is finding it hard, and is not happy with me at all, just wants booby. I feel so mean wish I could comfort her.
She is not allowed to eat or drink at all untill quite a few days after op too so not looking forward to that, poor wee bubba. (luckly they give her vitamins and minerals through her iv tube).
Other than that Emily is coping quite well considering, she has been sitting up again today and playing a wee bit, she is a wee fighter.
So I am off to the maternity ward again now to express some more milk, will keep you posted.
Aww poor wee Emily! Anna you guys are so Brave i honestly dont know where you all get your strength from but i think its wonderful! Emily your a trooper keep being brave & fighting through each step of getting better!! Anna So glad to hear your still breast feeding well done & good on you for sticking with it even if Emily cant have any at the mo! Please Give emily a big cuddle & kiss from us & we will be thinking of you girls on friday & hope everything goes well for her operation!! Lots of loves Karla,Katie & Milly xoxox
ReplyDeleteHi Anna, Brendan and Princess Emily. Our thoughts and prayers are with you all especially Baby Em on friday for her op. We think about you lot daily and is great reading your blog Anna, keep it up as its a great way to keep up on Emily's prgress.
ReplyDeleteGail & Terry xxxooo
Geez, man! Why don't more professionals, who do know kids in general, listen to parents who do know their individual kids so well! Kia kaha, family, you will get through. Love Jo and the Long family.
ReplyDeletehi, my heart goes out to your family this x-mas. donated $40, not much but is all i could give. love aden
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